Bleeding Disorders Patient Navigation
Securing access to prescribed therapy, resolving insurance issues, and dealing with medically-related financial burdens represent some of the health system challenges faced by members of the bleeding disorders community.
Our Patient Navigation Program is here to help!
These services are offered at no cost and are available to any member of the bleeding disorders community regardless of product, pharmacy affiliation, or insurance coverage.
Fill out the form and let us help!
A member of the Patient Navigation team will contact you within one business day to support a personalized plan of action.
In 2021, 82% of patients reported delays in accessing prescribed therapy and 84% of prescribers experienced some level of difficulty starting patients on complex medications.i In the bleeding disorders community, 74% of patients referred to the Hemophilia Federation of America’s Project CALLS program reported being denied access to a product, and 49% experienced delayed care or went without treatment due to insurance issues.ii
For members of the bleeding disorder community who experience challenges related to insurance coverage, difficulties accessing prescribed therapy, financial burdens due to medical care, and issues with employment or school related issues—our patient navigation program provides individualized resources and support to overcome common, non-clinical barriers to care. We have assembled a team of experts with years of bleeding disorder specific experience in insurance processing, social work, and education to help patients coordinate access to care in an increasingly complex healthcare environment. These services are offered at no cost and are available to any member of the bleeding disorders community regardless of product, pharmacy affiliation, or insurance coverage.
Patient navigation has been defined as, “Individualized assistance offered to patients, families, and caregivers to help overcome health care system barriers and facilitate timely access to quality health and psychosocial care.” iii
Patient Navigators are peer, non-medical, and medical professionals who assist patients to coordinate support across the health system which can include education, removing financial and other barriers to care, assisting with insurance coverage, facilitating access to community resources, and providing emotional support.iv Research indicates patient navigation services using peer, medical, or non-medical staff are effective at resolving health-system barriers and result in improved outcomes and increased patient satisfaction. iii, v
i. CoverMyMeds. (2022). 2022 Medication Access Data Guide. https://bit.ly/bdpn-1
ii. Hemophilia Federation of America. (2020). Project CALLLS: Creating alternatives to limiting or lacking services. https://www.hemophiliafed.org/news-stories/2020/09/project-calls-creating-alternatives-to-limiting-or-lacking-services/
iii. Blackley, K., Burriss, H., Cantril, C., Kline R., Pratt-Chapman M., Rocque G., Rohan, E., Shulman, L. (2019). Patient navigation in cancer: The business case to support clinical needs. Journal of Oncology Practice. 15,11 585-590. DOI: 10.1200/JOP.19.00230.
iv. McBrien KA., Ivers N., Barnieh L., Bailey JJ., Lorenzetti DL., Nicholas D., Tonelli M., Hemmelgarn B., Lewanczuk R., Edwards A., Braun T., Manns B. (2018). Patient navigators for people with chronic disease: A systematic review. PLoS One. 2018 Feb 20;13(2):e0191980. DOI: 10.1371/journal.pone.0191980.
v. Meade CD., Wells KJ., Arevalo M, Calcano ER., Rivera M, Sarmiento Y., Freeman HP., Roetzheim RG. Lay navigator model for impacting cancer health disparities. (2014). Journal of Cancer Education. 2014 Sep;29(3):449-57. doi: 10.1007/s13187-014-0640-z.
