Resources
At BioMatrix, we understand that life with a bleeding disorder can be a little easier when connected to the right resources and support.
The organizations listed below provide a range of services for individuals and families managing a bleeding disorder.
Learn, connect, and grow with these community focused organizations.
National Bleeding Disorders Foundation
Established in 1948, National Hemophilia Foundation (NHF) is a leader in supporting innovative solutions to help people with bleeding disorders and their families manage their disorder and improve their quality of life.
7 Penn Plaza, Suite 1204
New York, NY 10001
Phone: (212) 328-3740
hemophilia.org
Hemophilia Federation of America
Hemophilia Federation of America, Inc. (HFA) is a patient education, services and advocacy organization serving the rare bleeding disorders community. They are exclusively focused on the bleeding disorders patient and caregiver community.
999 N. Capitol Street NE, Suite 201
Washington DC 20002
Phone: (202) 675-6984
hemophiliafed.org
The Coalition for Hemophilia B
Founded in 1990 by Joyce and John Taylor when their son was diagnosed with moderate/severe Hemophilia B, the Coalition was formed to provide information about treatment options to patients and their families that will improve quality of life, as well as to instigate research and product development.
757 Third Avenue, 20th Floor
New York, NY 10017
Phone: (212) 520-8272
hemob.org
LA Kelly Communications
LA Kelley Communications was founded in 1990 with the belief that any individual facing hardship, adversity or challenges–when given the right tools–can overcome, triumph, and even grow stronger in character and confidence.
37-39 West Main Street, #8
Georgetown, MA 01822
Phone: (978) 352-7657
kelleycom.com
Committee of Ten Thousand
The Committee of Ten Thousand (COTT) is a grass-roots, peer-led, education, advocacy and support organization for persons with HIV disease. COTT advocates for disenfranchised chronic disease communities, especially those communities dependent on a safe national blood supply.
236 Massachusetts Avenue NE, #609 Washington DC 20002
Phone: (202) 681-235
cott1.org
Hope for Hemophilia
Hope for Hemophilia is a 501(c)(3) non-profit organization established to be a giver of hope, strength and resources. We have been helping people living with hemophilia and their families through seasons of crisis since 2009 with financial, emotional and practical support
P.O. Box 77728
Baton Rouge, LA
Phone: (888) 529-8023
hopeforhemophilia.org
Accessia Health
Accessia Health pioneered the patient assistance model for people living with chronic medical conditions. We provide financial assistance to pay for prescriptions, medical treatments and expenses, and insurance premiums. Our program services include healthcare education, specialized legal services, and case management.
PO Box 5930
Midlothian, VA 23112
Phone: (800) 366-7741
accessiahealth.org
CHES
Seeing a void in patient education, the founders decided to create CHES as a resource to provide individuals with chronic medical conditions with the support that allows them to assert their independence and the knowledge to more fully engage in their treatment.
89 E. Washington Street
Hanson, MA 02341
Phone: (781) 878-8561
ches.education
Permanent Change of Station (PCS) Resource Guide
BioMatrix Specialty Pharmacy is proud to serve the women and men of our military.
Providing seamless continuity of care for our TRICARE beneficiaries is both an honor and a privilege. Our Permanent Change of Station Resource Guide was designed specifically for military families caring for a child with a bleeding disorder.
