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Insurance Basics: Everything You Didn’t Know You Need to Know
Examines a number of insurance challenges—prior authorizations, step therapy, specialty tiers, copay accumulators—and discusses the appeals process.

Disability Preparedness: Understanding Short-Term, Long-Term, and Social Security Disability
Offers information on short-term, long-term, and social security disability and answers key questions about applying for and receiving disability plans.

No Need to Bleed:
A Study in Health Equity
Examines hemophilic arthropathy, micro-bleeding, and prophylaxis in an era of advanced therapy regimens. This data-rich program asks what the aspiration goals are for hemophilia joint health in the modern age.

The Right to the Right Coverage: Patient Rights and Health Insurance Policies
Reviews patient rights, explores common medication coverage challenges, and provides tools to avoid experiencing a delay in therapy.

Awareness for Advocacy
Highlights the need for record keeping, health literacy, and using tools for becoming an informed advocate when faced with challenges, such as appeals, denials, and problems with access to care. S

Women Bleed Too
Discusses the signs and symptoms of a bleeding disorder, the difference between a “symptomatic carrier” vs. “women with a bleeding disorder” and provides an avenue to document vital information and open dialogue with a provider. S

Being a Young Advocate: Advocacy & Self-Advocacy for Teens and Young Adults
Participants engage in conversations about self-advocacy and problem solve common self-advocacy situations that occur at the doctor’s, at school, and at work.

Safe Travels: 2021 and Beyond
Offers valuable information on how to prepare for vacations while caring for someone with a bleeding disorder.

The 411 on 504s
Provides guidance to parents and caregivers of school-aged children. Includes extensive details about educational rights, including information on establishing a 504 Accommodation Plan. S

Scholarship 101
Workshop-style program designed to assist high school students identify available college scholarships, what items are needed, how to apply, and how to keep track of applications.

Transition of Care to Another
Helps prepare parents and caregivers to feel comfortable leaving their child with a bleeding disorder in the care of another (babysitter, daycare, etc.).

Transition to Independence
Addresses the benefits of medical independence at home, school, or work. Helpful tips and practical takeaways are featured.

Camera On: Healing and the Art of Photography
Highly interactive photography program. Engages recent research regarding the impact of art and photography on one’s health. Participants apply their photo skills in several picture-taking activities.

Singing to Heal
Interactive discussion of music, the brain, and healing. This program empowers participants to tap into the healing power of music and into sharing the emotional experience with others.

Intro to Figure Drawing
Demonstrates scale and proportion for drawing human-like figures while also covering general artistic principles.

Writing to Heal
Explores the calming effect of writing while learning various approaches to channel writing into a positive experience with valuable impact on their lives.